To Join the group please email lymph@rcn.com with your contact information! Meeting Sponsord by MSKCC (Sloan Kettering) Let's Talk about Lymphedema MONDAY OCTOBER 16, 2006 11:00 AM to 12:30 PM Educational Support Meeting   For more info:  E-mail:ptrp@mskcc.org Presentation: Focus on Lymphedema Summary: Join us for a supportive discussion on strategies for managing this challenging condition. Sponsor:Post-Treatment Resource Program Speaker(s):Page Tolbert, LCSW  Jeannette Zucker, DPT, CLT, CSCS Audience: This program is for those who have lymphedema. Location: October 16th Memorial Hosptial 1275 York Avenue (Between 67th and 68th Street)Room M107 New York, NY 10021 December 11th Rockefeller Research Laboratories430 East 67th Street(Between First and York Avenues)New York, NY 10021Room RRL 116 ADDITIONAL MEETINGS SPONSORED BY SHARE FOR WOMEN WITH CANCER RELATED LYMPHEDEMAS Lymphedema Support Women with lymphedema meet to share experiences and information and to connect around the emotional issues that arise while coping with this chronic condition. The group will be led by a SHARE facilitator dealing with lymphedema. Dates: Sep 25   From: 6:00 PM       To: 7:30 PM    SHARE Main Office 1501 Broadway Suite 704A New York, NY 10036 Phone: (212) 719-0364 Fax: (212) 869-3431 Directions: Between W. 43rd & W. 44th Sts. Note: Please bring photo ID

About the Group The Support group meets about four times annually to discuss our personal situation with Lymphdema and how to cope, manage and treat it. The group is run for, and by patients with Lymphedema. We are not affiliated with any hospital, group, foundation or treatment facility. I believe this gives us the freedom to have any and all treatment options and products represented in an unbiased way.  We do have medical experts speak at our meetings as the group is geared toward information gathering. We usually have a speaker (doctors, therapists, social workers, etc.) with information on topics that will help us improve our quality of life as we deal with Lymphdema. In the past we have had experts from the local medical community speak on topics such as: Skin Care & Infections: How to deal The Reid Sleeve and other garments to contain swelling Lymphocynthigraphy: Imaging to Diagnose Lymphedema Ostepathy and Lymphedma The Emotional Cycle of dealing with Lymphedema Research Developments in the field of Lymphology We also provide referral information on how and where to get treatment. To be added to the mailing list email your name, address and information about what kind of Lymphedema you have to lymph@rcn.com                 or by mail to Maureen Schilling  1646 First Avenue #6C  NY NY 10028 This information is kept strictly confidential.

 

PLEASE CHECK OUR NEW THERAPIST LISTINGS IN THE RESOURCE GUIDE!!!!

I wish I could produce this website and our newsletter more frequently but I need help with ideas, information, classifieds, personal experiences, suggestions, questions, letters,anything and everything!!!

If you come across something related to Lymphedema somewhere we can see if we can reprint it as well! I also need help with many other projects.

One project I really want to complete is our support group brochure. We will have some drafts of it ready soon but need your suggestion and feedback. This will be a useful guide/tool to give to primary care physicians, insurers, newly diagnosed or at risk patients as well as family members looking to learn about Lymphedema and specifically what is available in our metro area. I will need a resource to print this as wellif you have any connections let us know!!!

Also looking for buddies to talk to new LE patients reaching out for help. I would like a list of people who would be available to speak by phone with people with a similar diagnoses, age group and situation. Remember how it is to feel all alone with Lymphedema...Many of the people who I speak with can not reach the meetings for various reasons but need to make a connection. It helps you both!!!

GET INVOLVED!
email
lymph@rcn.com